It was definitely an amazing week. Throughout it all (i.e., the approval, the interviews and the messages of relief), the most touching moment was when two of Maya's classmates approached us Monday morning and presented two sandwich bags full of cash and coins. They had raised money selling their artwork and wanted to donate the proceeds to the research project at Texas Children's Hospital. It was their wish to help Maya and young people like her fighting batten disease. It was a selfless and touching gesture representative of Maya's school and community. Thank you #SDCCS and all of you who make weeks like this one so special.
#FightingForMaya
Below are links to the latest news about the approval and interviews from our local station.
https://www.youtube.com/watch?v=7OhimYD_c7I
https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm555613.htm
http://www.10news.com/news/fda-approves-treatment-for-local-teen-with-rare-disease?autoplay=true
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